The best thing to help my chronic pain is also the most frustrating - what is it?

Last updated: 04-02-2020

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The best thing to help my chronic pain is also the most frustrating - what is it?

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Happy New Year everyone! I hope you’ve all had a good Christmas and New Year and have been able to rest and manage your pain as best you can over the holiday season. I did plan on doing a New Year New Me type blog post – share my goals and resolutions etc – but decided to not to do that this week. Instead I wanted to write about the best thing to help my chronic pain that is also the most frustrating. Read on to find out what it is.

If you’re new to my blog, I basically have a sitting disability – I am in pain when I sit down. I also cause more pain (in my neck and shoulders) by avoiding my sitting pain, so trying to manage things can be extremely difficult and exhausting.

Obviously, it is impractical and physically impossible to stand and walk all day, although I do this a lot, so the best thing for me and my pain management is to lie down. I am still in pain when I do lie down, but it is the least pain so it is the best thing for me.

But – and here’s the frustrating part – I just want to go to sleep when I do lie down. It’s the position we sleep in; our bodies tend to relax when we lie down; and my eyes want to close.

Because I am very often falling asleep by 8pm, in the middle of a TV drama or Netflix programme. I literally cannot keep my eyes open. I often think, ‘oh, I’ll just close my eyes and listen to the TV’ – the next minute I’m fast asleep.

It’s so frustrating because by this point in the day I am really struggling to sit. My pain builds throughout the day and is always worse in the evening. So, yes I could try and sit on the sofa rather than lie down, but I’m in agony, extremely fidgety, and make my other pains worse by leaning forward or to the side.

It’s also very frustrating as this is the time in the week that I have to spend with my partner. We both work full time hours, so our evenings are very precious, and what I call family time: the dogs are always with us and I want to make the most of this time and not be asleep.

It’s also frustrating because when I fall asleep in the evening, it usually means it takes me longer to fall asleep when I do go to bed, or I am more likely to wake upon the middle of the night. This has a knock-on effect on my pain management as it means I am more tired and find it even harder to manage my pain.

It’s also frustrating as lying down after having my dinner is more likely to cause more acid reflux (which I also suffer from) and this causes my hiatus hernia pain – which is incredibly painful. I describe it like someone is standing on my with a stiletto heel.

Maybe I need to be more active in the evenings and watch less TV. It’s hard because I am so tired and we all need some time to relax. Plus, I enjoy watching TV, especially a good Netflix drama. I’ll let you know in a future blog post if I do anything different and how I get on.

Do you have the same frustrations as me?

If you have pain when you sit down, how do you manage things?

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